www.fuseinc.org

Learning to live with a disability takes support, encouragement and the dedicated time of family, friends and professionals. Making sure no family has to go through that process alone is the mission of one Indiana non-profit organization. Families United for Support and Encouragement, FUSE for short, serves as a resource for families who do not know where to turn when their child receives a disability diagnoses.

Denise Arland, the founder of the organization, told Regis Philbin in a Hallmark Heroes interview that she wanted a way for parents to meet and come together. She wants people to know that these children are going to contribute to society in a meaningful way.

“What I learned was, that our challenge as parents is to make sure that our children participate in their community, just like their peers do,” Arland said.

The word disability can be scary. Most parents do not understand what is happening to their child and can feel hopeless in the situation. FUSE seeks to act as a resource and as a group of caring individuals who understand what it feels like to have a child with a disability and will do anything to help, even if they cannot answer a question, they know someone who can. While one cannot ignore the fact that their child lives with a disability, FUSE wants to make sure that parents and the community understands that children with disabilities are children first. Believing in diversity and involvement, the organization believes that emphasizing a child’s abilities will empower them to achieve their full potential, no matter what.

Whether you just want the information or want involvement, FUSE is there for you. FUSE offers many activities for children with disabilities and their families to take part in. From the annual family picnic, to community awareness activities and regularly scheduled expert talks, the organization wants to provide as much information and support as possible. There are many benefits to becoming a member of FUSE, the atmosphere invites friendly conversation, as well as welcoming faces and a resource library of books, magazines and videos about raising children with disabilities, just to name a few! Be sure to check out their Calendar of Events if you want to learn more.

FUSE wants to help families understand that there is life after disability and that life is great.

Need more information? Contact the organization at 317.462.9064

Easter Seals Crossroads

Easter Seals Crossroads

The Adult Day Services at Easter Seals Crossroads in Indiana is offering a transition skills program for adults with autism or developmental disabilities.

Individuals who will benefit from Transitional Skills programming should meet the following criteria:

  • Must be at least 18 years of age
  • Must not be a “flight” risk
  • Must not demonstrate behaviors that put self or others at risk of injury
  • Must not demonstrate intentional or continuous disruptive behaviors that interrupt the program services for others
  • Must have an attention span of greater than 10-15 minutes per activity
  • Must be able to complete 1-2 step directions
  • Must be able to communicate needs
  • Must be able to have needs met by the resources of the center
  • Must have a desire to increase independent living skills

The Transitional Skills Curriculum is designed to promote life skills for adults with goals of independent or semi-independent living and/or employment.   Skills such as cleaning, laundry, cooking, budgets and money handling, relationship skills, personal safety, basic employment skills, and community skills will just be some of the skills covered for adults enrolled in the program.  Activities will take place in a home-like environment and in the community.  Adults will be supervised by trained staff and with a low adult to staff ratio.

Contact Tracy Wright at 317.466.2008 or email twright@eastersealscrossroads.org for more information.

Limited scholarships are available.

Storm Front

You can’t turn on the television lately without hearing news of flooding, severe storms and tornados. According to the National Weather Service, “there have been more than 600 tornados during the month of April 2011”. This beats the previous set record of 267 tornados in one month in April 1974. The news stories of these tornado outbreaks of historic proportions leave many wondering, “how would I respond if I was faced with a disaster”?  That is a question everyone should be asking themselves. These emergency situations can make anyone feel helpless.  For millions of Americans who have special needs, emergency situations can present an even greater challenge. One of the most important things someone can do is to have a written personal plan in case of an emergency.

It is advised for everyone to have a personal plan in the event of an emergency. For those with special needs, disaster planning is all the more important to make sure their needs will be met in case their usual ways of support are not available to them during or after an emergency. It is also advised to create a support network and make sure that everyone is aware of your emergency plan.

Creating a support network is one of the most important things you can do to assure you will have the assistance you need during an emergency. A personal network can include people from home, school or workplace. You should include people you trust who will make sure to check in and see if you need assistance. They should know your capabilities and needs.

You should then share your emergency plan with your support network. Making a written emergency plan can help you prepare and cope with a disaster effectively and will assist your personal network or emergency crews in assisting you if you should need help.  Everyone in your support network should be given a copy of your emergency plan.  It is advisable to have multiple people in your support network to make sure there is always someone available to assist you.

You should list your personal needs and resources for meeting them in your plan. You should base your needs on your lowest anticipated level of functioning. There are all the typical things to consider when creating your plan such as where to meet family members and emergency contact information.  However, for those with disabilities there may be other considerations in writing a personal plan. Things to consider might be:  assistance necessary for personal care, a list of the type and model numbers of the medical devices you require, adaptive feeding devices, electrical dependence for equipment such as electric lifts or a dialysis machine, your ability to get around should there be debris, transportation needs, ability to evacuate a building or a service animal that may need assistance?

Writing a personal plan can help you assess a situation and put a plan in place. Ask yourself questions such as: What if there is a power outage and I am dependent on electrical medical devices? Do I have a back-up power? Have I registered with my local utility company to inform them that I am dependent on a electric medical device? How would I alert someone of a medical emergency situation? Do I need a medical alert system? If I can’t use my power wheelchair or scooter is there a manual one available for backup? Do people in my support group know how to operate my necessary equipment if I need assistance? Does my service animal have the proper license that would permit them to enter an emergency public shelter if I needed temporary housing?

It is a challenge for anyone who finds themselves in an emergency where they might be evacuated from their home or confined to their home during a disaster. It can be even more challenging for people with disabilities. The best way to be prepared for an emergency situation is to be responsible for your or your loved ones safety. Planning is the key. Writing a personal plan will help you become prepared and will also aide anyone who would need to assist you. When thinking of your emergency plan you should consider what needs you may have for getting emergency information, meeting daily living needs, getting around, evacuating and what resources are available to you should you be left without necessary adaptive equipment.

Writing an emergency plan, establishing a support network, creating a way to give quick information on how you can best be assisted and knowing your resources could potentially save your life or the life of a loved one. To learn more about emergency preparedness resources in the state of Indiana click here. You can also check out our loan library website here should you find yourself needing temporary use of an assistive technology device during an emergency.

Southwest Airplane

Southwest Airplane

For individuals with disabilities who want to travel during the holiday season, accessibility on airplanes and at airports becomes a concern. In fact, accessibility during travel for these individuals is a concern year round. Luckily, some airlines have made it a top priority to accommodate and ease the travel experience for people who may be in need of additional help.

Southwest Airlines has a number of attributes that make it a top contender in the airline service sector. Their tickets are competitively priced, passengers do not have to pay to stow their luggage, and they have worked tirelessly to become a premier airline when it comes to offering services for individuals with disabilities.

The following is a list of services offered for customers with a physical disability:

  • Airport wheelchairs for use in the airport are available once you have relinquished your personal chair to be stowed.
  • Assistance while boarding before other passengers.
  • A small wheelchair that can fit down the aircraft aisle is available at every gate.
  • Each gate is equipped with a Passenger Transfer Kit (PTK), which contains a slide board and a transfer sling. The sling allows for two or three employees to lift the customer safely from his/her wheelchair into the small wheelchair and then into the aircraft seat.
  • The first two rows (at a minimum) on each aircraft are equipped with movable aisle armrests.
  • Employees who are trained on assisting customers into and out of the aircraft seat; however, the customer being transferred knows the best way for them to help, therefore assisted customers are encouraged  to direct the employees in how best to perform the lift and transfer so everyone will be most comfortable, and so that there will be a successful transfer.

Below are some services offered for passengers with a cognitive disability:

  • Assistance with pre-boarding
  • Introduce the customer to the flight attendant and make the flight attendant  aware of the customer’s special needs.
  • Advise the customer that he/she needs to deplane at his/her destination or that he/she needs to remain onboard at a stopover city. Southwest cannot, however, guarantee that he/she won’t deplane at an intermediate stop if he/she does so without their knowledge.
  • Assist the customer from his/her arrival gate to his/her departure gate if his/her itinerary involves a connection. However, the customer must identify him/herself as having requested assistance when he/she arrives at the airport.

In addition, Southwest  offers services and accommodations upon request for individuals who are deaf or hard of hearing, blind or have low vision, persons who need to administer medication via syringe during the flight, persons in need of trained assistance animals, individuals in need of emotional support animals, individuals who use portable oxygen concentrators (specified models), and persons using other assistive devices, such as walkers, canes, crutches, CPAP machines, etc. Southwest Airlines works hard to ensure the comfort and ease of travel for all of their passengers.

Click Here for more information on disability services and assistive technology support offered by Southwest Airlines.

Noblesville’s Joey Alise Murello Crowned

People On Wheels’

Ms. Wheelchair Indiana 2010

Presented by Helmer, Inc.

Ms. Wheelchair Indiana 2010

Ms. Wheelchair Indiana 2010

Noblesville native Joey Alise Murello, was crowned People On Wheels’ Ms. Wheelchair Indiana 2010 at Indianapolis Museum of Art ceremonies in support of Disability Awareness Month, on Saturday, March 6th. The event is a People On Wheels outreach to promote the disability community and provide a platform for a dialogue from which disabled women can address their fellow Hoosiers.

Murello is 26 years old and works full time at International Medical Group in Indianapolis. She suffers from Friedreich’s ataxia, an inherited disease that causes progressive damage to the nervous system resulting in degeneration of nerve tissue in the spinal cord.

Murello is a graduate of Noblesville High School and attended Anderson University. She spends a great deal of time volunteering and working with children, both as a cheerleading coach for the Upward Basketball season at her church and with the Apprentice Players at the Hamilton County Belfry Theatre. As Ms. Wheelchair Indiana 2010, Joey says she “will promote and focus on the abilities of those with disabilities to help remove the perception that ‘we are different.’ ”People On Wheels’ Ms. Wheelchair Indiana program focuses on the accomplishments of Indiana residents with disabilities. “Our mission is to educate, advocate and raise awareness of the abilities and needs of the disability community,” said.

People On Wheels president, Nancy Cotterill. The titleholder will enjoy a year long reign speaking at various engagements throughout the state.  Murello will travel to Grand Rapids, Michigan to compete in the Ms. Wheelchair America Pageant 2011, to be held August 9-15, 2010.

People On Wheels, Inc. is a 501(c)(3) organization that provides the only news, information, research, and accessibility information for and about wheelchair users online at www.peopleonwheels.org with  local information on several cities including Indianapolis.

Visit Ms. Wheelchair Indiana 2010 on Facebook.

What: Special Olympics Indiana hosting 41st Summer Games event Bicycle race

Where: Indiana State University, Terre Haute

When: June 4 – June 6

Why: More than 2,500 Hoosier athletes will compete in seven different sports: Aquatics, Bocce, Bowling, Cycling, Horseshoes, Track & Field, and Volleyball.  The Summer Games will kick off with the Vigo County Law Enforcement Torch Run.

Special Olympics Indiana is a non-profit organization that provides training and competition for people with intellectual disabilities across the state.  They operate year-round and serve both children and adults in Indiana.

Visit their website to learn more about the Summer Games event.

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